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We hope these sites will provide you with support and a starting point as you or a loved one deal with end-of-life issues. You will find resources for individuals with disabilities and their families as they tackle a life threatening illness and/or end-of-life care.
Death,
dying, and caregiving resources
This website provides a list of helpful webpages
on topics such as spiritual & reincarnation sites, living wills,
pain management, euthanasia, funeral preparations, writing an obituary, etc.
http://diannebrownson.tripod.com/passages.html
Hospice
Net
This website is for individuals and their families facing a life-threatening
illness. Information is provided on services and bereavement for
patients and caregivers. Services include finding a local hospice,
frequently asked questions, the Hospice concept, the Hospice team,
and questions you should ask about Hospice care.
Information for patients includes pain control: dispelling the myths,
helping yourself live while you are dying, advance directives, how
to relieve pain without medicine, Medicare Hospice benefits, talking
to children about death, choosing how to end, a dying person's guide
to dying, palliative care, prescription pain relievers, and non-prescription
pain relievers.
Information for caregivers includes how to be a supportive caregiver,
helping a friend who is dying, hard choices for loving people, Family
and Medical Leave Act, preparing for approaching death, hiring in-home
health, saying good-by, and more.
Information on bereavement includes a guide to grief, spiritual
readings, children and grief, helping teenagers cope with grief,
knowledge of the grief process, ideas for writing, what we need
during grief, poetry, helping ourselves through the holidays, healing
after a loss, and more.
http://www.hospicenet.org
National
Hospice Foundation
The National Hospice Foundation (NHF) seeks to expand our vision
for end-of-life care. Consumer brochures provide information on
Hospice Care: A Consumer's Guide to Selecting a Hospice Program,
Communicating Your End of Life Wishes, and the Medicare Hospice
Benefit.
http://www.hospiceinfo.org
National
Hospice And Palliative Care Organization
Under Hospice Care Information, you will find topics on how to select
and find a hospice program, communicating your end of life wishes,
and the Medicare Hospice benefit.
http://www.nhpco.org
Death
and Dying
MEDLINEplus provides information and a general overview that includes
A Dying Person's Guide to Dying, How to Help During the Final Weeks
of Life, and What to Do Before and After the Moment of Death. Other
topics include coping, specific conditions such as advance directives
and end of life care, management of pain and other symptoms, shortness
of breath, talking about your choices, law and policy, and children.
http://www.nlm.nih.gov/medlineplus/deathanddying.html
